The Key that will enable you to take control is "information".
- First we have to learn as much as we can about Multiple Sclerosis on the scientific
and practical aspects of it. Learning about MS is the only option you have if you
want to take control of your life.
- Many neurological diseases have similar symptoms.(See links) The more you learn
about your condition, the more you will know if it was diagnosed correctly and if
they have done or not, all the tests required for a correct diagnosis.
- If you are informed of the many options available you will be able to discuss the
alternatives with your doctor and choose the treatment that is more appropriate for
you. There are many organizations that will send you literature for free and
electronic mail with links to the latest information published. (See links)
- It is important to talk to your doctor. You can keep notes of your questions or
doubts and bring them to your appointments. The faster you tell your doctor about
your symptoms, the faster you can get it under control.
- Your doctor can also give you ideas about exercises, or refer you to a Physical
Therapist so you can keep being flexible. He/She can put you in contact with
supports groups or organizations that are in your area and can help you at a given
time. You can also discuss alternative therapies with your doctor. It was very
useful for me to learn different relaxation techniques and meditation.
- Make sure that you tell your doctor if you are depress. They say that some of the
medications that are use to treat MS can cause depression but the disease itself is
very depressing. Always remember that you are not alone.
- Always keep copy of your test results- labs, X rays, MRI,CAT. Keep an actualize list
of your medication. All this will help you coordinate your treatment when you go to
see other specialists.
- Explain to your family and friends what is going on and how you feel. That will help
them understand the situation and will make it easier to ask for help when you
need it. I have divided my days in three categories: Good, irritable and difficult
(slow). During the very, very bad days, ask a family to convey to others how you
are. That way you will avoid getting more depress about it by having to tell the
same thing over and over.
- Make sure you establish a S.O.S. System. You may be able to get a "life line"
system or any other emergency system in your area. That way in case of
emergency you just press a bottom and an operator will talk to you and send the
appropriate help. If that kind of system is not available in your area, you can always
have with you a cell or a wireless when you are at home with preprogrammed
numbers that way you can ask for help faster, Don't feel ashame to ask for help, it
is wise and a real necessity.
- If you have mobility problems please notify the fire department in your area, that
way in case of evacuation they will know that you need help .
- Plan ahead. If you learn to hear your body when it needs to stop and rest, and take
periodic breaks you will be able to continue to be productive.
- Keep a positive frame of mind. MS has nothing to laugh about but a good laugh
can help you through the day. There will always be something that will make you
laugh specially on those days that our body decides to go on opposite direction of
where you want to go.
- To keep the spirits high, surround yourself with the things that you like most-
music, memories, photographies, hobbies or a pet. You can create your special
place where you can relax after a days work. You have to consider that you may
spend many days inside your house.
- It is important to learn to recognize your blessing. A dear friend of mine taught me
to give thanks every night before going to sleep. To give thanks for the small
things like the breeze that cross our way when it is hot, a beautiful flower that
crosses our way or the day that your kids offer to help without you asking for.
Even on your bad days you can give thanks surviving it without much problems. If
you do this every night you will learn a different way to see life and it will help you
to deal with everyday situations.
|
