The Key that will enable you to take control is "information".
- First we have to learn as much as we can about Multiple Sclerosis on the scientific and practical
aspects of it. Learning about MS is the only option you have if you want to take control of your life.
- Many neurological diseases have similar symptoms.(See links) The more you learn about your
condition, the more you will know if it was diagnosed correctly and if they have done or not, all the
tests required for a correct diagnosis.
- If you are informed of the many options available you will be able to discuss the alternatives with
your doctor and choose the treatment that is more appropriate for you. There are many
organizations that will send you literature for free and electronic mail with links to the latest
information published. (See links)
- It is important to talk to your doctor. You can keep notes of your questions or doubts and bring
them to your appointments. The faster you tell your doctor about your symptoms, the faster you
can get it under control.
- Your doctor can also give you ideas about exercises, or refer you to a Physical Therapist so you can
keep being flexible. He/She can put you in contact with supports groups or organizations that are in
your area and can help you at a given time. You can also discuss alternative therapies with your
doctor. It was very useful for me to learn different relaxation techniques and meditation.
- Make sure that you tell your doctor if you are depress. They say that some of the medications that
are use to treat MS can cause depression but the disease itself is very depressing. Always remember
that you are not alone.
- Always keep copy of your test results- labs, X rays, MRI,CAT. Keep an actualize list of your
medication. All this will help you coordinate your treatment when you go to see other specialists.
- Explain to your family and friends what is going on and how you feel. That will help them understand
the situation and will make it easier to ask for help when you need it. I have divided my days in three
categories: Good, irritable and difficult(slow). During the very, very bad days, ask a family to convey
to others how you are. That way you will avoid getting more depress about it by having to tell the
same thing over and over.
- Make sure you establish a S.O.S. System. You may be able to get a "life line" system or any other
emergency system in your area. That way in case of emergency you just press a bottom and an
operator will talk to you and send the appropriate help. If that kind of system is not available in your
area, you can always have with you a cell or a wireless when you are at home with preprogrammed
numbers that way you can ask for help faster, Don't feel ashame to ask for help, it is wise and a real
necessity.
- If you have mobility problems please notify the fire department in your area, that way in case of
evacuation they will know that you need help .
- Plan ahead. If you learn to hear your body when it needs to stop and rest, and take periodic breaks
you will be able to continue to be productive.
- Keep a positive frame of mind. MS has nothing to laugh about but a good laugh can help you
through the day. There will always be something that will make you laugh specially on those days
that our body decides to go on opposite direction of where you want to go.
- To keep the spirits high, surround yourself with the things that you like most-music, memories,
photographies, hobbies or a pet. You can create your special place where you can relax after a days
work. You have to consider that you may spend many days inside your house.
- It is important to learn to recognize your blessing. A dear friend of mine taught me to give thanks
every night before going to sleep. To give thanks for the small things like the breeze that cross our
way when it is hot, a beautiful flower that crosses our way or the day that your kids offer to help
without you asking for. Even on your bad days you can give thanks surviving it without much
problems. If you do this every night you will learn a different way to see life and it will help you to
deal with everyday situations.
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